National Hereditary Bleeding Disorders Information Management and Surveillance System (HemophiLINE)
HemophiLINE is a web-based software with two major components:
1 - Information Management System (IMS)
2 - Surveillance System
With the IMS component, HemophiLINE helps follow up of hemophilia patients, their treatment and complications they may experience.
Its surveillance component helps monitor the medicine usage on city/region/country levels to maintain regional self-sufficiency, identify long-term national requirements and strategies, develop corrective measures, improve standards and hemophilia treatment services by collecting data and generating queries, reports and statistics.
✔ All user activities are recorded and saved in terms of duration and activity type
✔ Separately controlled user authorization tool for each screen and module
✔ Effective search and query tools in all modules
✔ User-friendly interface
✔ Definition of medical centers, physicians and users
✔ Dynamic definition of factors, medicines and blood products
✔ Registration of the patients’ demographic information and all information relevant to the disease
✔ Registration of all information about patient’s bleeding problems, traumas, coagulation times, circumcision and surgeries
✔ Graphical display of the family tree including relatives who have bleeding disorders
✔ Automatic calculation of orthopedic and radiological scores for the joints
✔ Visual warnings when the test results fall out of the reference range
✔ Using the start and end dates of factor administration in treatment module.
✔ Follow-up of treatment complications
✔ Monitoring the inhibitor development throughout the treatment period
✔ Reporting module that contributes national planning efforts and scientific research studies
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